NOTE: After posting this, I re-read it. I know it’s a bit out of order chronologically, but I’m not going to fix it. I’m just not up to it right now.
They are saying it’s CHF. Congestive heart failure. But there is no apparent reason, and there is no change in Mom’s status. The EEG’s have shown no changes. Her eyes are no longer opening now. All those tubes and wires are still there, so she doesn’t really look like my mom, but I know it is. Dad saw Mom yesterday. Jason and Ted’s boss offered the use of their son’s custom van. It has wheelchair restraints, so we were able to get Dad there easily. We were also able to use the van again today.
We (my brothers, my cousin Betsy and I) all sat down this morning with Dad to have a difficult but necessary discussion. We all believe that Mom would want a DNR signed. Dad is the only who can legally do that. So we asked him what he thought Mom would want. He said they had discussed this before and he knew she would want the DNR. We told him that this was not his decision alone, but a decision we all believe in together. That we all felt it was the right thing to do. When we brought him down to the hospital, we felt it better that we get the paperwork all done before we went in to see her. If we went in to see her first, it would only be harder to sign the papers. Jason and Garrett also signed as witnesses, so Dad wouldn’t have strangers as witnesses. We felt it better so that he didn’t feel as though he was in this alone.
Dad asked for a minister to come say a prayer. I’ve never known my father to be a religious person… not that he doesn’t believe, but only that he never went to church. At least for as long as I can remember. I know he used to go to church when he was a kid… my grandmother made him go. Almost everyone was there for the prayer. Me, Betsy, Jason and his wife Danielle, Ted, Garrett, and two of my boys, Mikey and AJ. Brian is feeling this pretty hard, and visited yesterday, but nearly broke down today, and didn’t want to go. Ted’s ex (Joellen) and her mom (Judy) brought his boys down today, and Danielle brought down her and Jason’s daughter and son. We all took turns visiting Mom in small groups. First Ted, Joellen, Judy and the two boys. Then Jason, Danielle, and their two kids. Followed by Betsy and Garrett. Then Dad, me, Mikey and AJ. Then the minister came in for the prayer.
We all went out the waiting room after awhile. Even Mikey’s ex-girlfriend came down with him. She came down yesterday too. I was kind of surprised, but glad. Yesterday, they brought the baby. Not that Kaison would know what’s going on. He’s only 11 1/2 months old. And we’re not even sure Mom knew he was there, but it was important to Mike that he and Arica brought Kaison in to visit.
At this point, we’ve all pretty much been in to say good-bye. I think (and my brothers feel the same) that she has been waiting for us to give our love and prayers, and to tell her its okay to let go. It’s so hard for all of us. She’s only 57 years old. But if she can hear us, we don’t want her to feel as though she has to hang on because of us. (And yes, I’m crying as I type this.) I don’t really want to let go of her, but I know it has to happen. We don’t know how long she’ll be like this. A few days, a few weeks, a few months, a year… we just don’t know.
Others that came to see her today were my Aunt Jackie, my cousin Tiffany, Garrett’s wife Tracy, Joellen’s sister Jackie, and my grandmother (dad’s mother). And last night, Judy, Jackie, Joellen and Jessica (Joellen and Jackie’s sister) sent over a ton of food. Beans, salads, cookies, soda, deli meat and cheese, and so much more. Even Jason and Ted’s boss (Mary) sent over baked ziti and fresh garlic bread, made with garlic from her garden. It was wonderfully overwhelming and the fridge will be full for days.
But I still want my mom back. She’s too young for this. And now its up to God and her.